Our Story
We are Ari, Nancy, and Ben — a brother and sister-in-law caregiving team.
Ben lives with an ultra-rare condition called TUBB4A-related leukodystrophy. As his condition progressed, he became nonverbal and quadriplegic, leaving him with very limited options for interaction. His mind, however, remains sharp and full of life.
When we searched for tools to help Ben, most focused only on basic communication. They were slow to get, costly, and limited in what they offered. Ben wanted more — to play games, browse the internet, watch his favorite shows, and truly connect with the world.
So, we built our own. Using creativity and AI, we designed a custom two-button system that Ben controls with his head. Now he can type, communicate, watch shows and movies on any streaming platform, search YouTube and Google Images, and play custom-built games — all through one simple, accessible hub.
Our journey showed us what's possible when families and technology come together to create tools built not just for basic needs, but for connection and joy.
